Genetic discrimination : transatlantic perspectives on the case for a European-level legal response /
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| Imprint: | Abingdon, Oxon ; New York : Routledge, 2015. ©2015 |
|---|---|
| Description: | xvi, 282 pages ; 24 cm |
| Language: | English |
| Subject: | |
| Format: | Print Book |
| URL for this record: | http://pi.lib.uchicago.edu/1001/cat/bib/10190666 |
MARC
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| 245 | 0 | 0 | |a Genetic discrimination : |b transatlantic perspectives on the case for a European-level legal response / |c edited by Gerard Quinn, Aisling de Paor, Peter Blanck. |
| 264 | 1 | |a Abingdon, Oxon ; |a New York : |b Routledge, |c 2015. | |
| 264 | |a ©2015 | ||
| 300 | |a xvi, 282 pages ; |c 24 cm | ||
| 336 | |a text |2 rdacontent |0 http://id.loc.gov/vocabulary/contentTypes/txt | ||
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| 338 | |a volume |2 rdacarrier |0 http://id.loc.gov/vocabulary/carriers/nc | ||
| 504 | |a Includes bibliographical references and index. | ||
| 505 | 0 | 0 | |g Introduction / |r Aisling de Paor, Gerard Quinn and Peter Blanck -- |g Section 1. Advances in genetic science and technology. |t Tracing the history, evolutin and future orientation of genetic science and technology / |r Aisling de Paor and Noel Lowndes -- |g Section 2. Ethical and legal dilemmas arising from emerging technologies. |t Diversity ethics and the impact of genetic technologies / |r Javier Roman̋ach Cabrero -- |t Genes, identity and clinical ethics under conditions of uncertainty / |r Rebecca Wolf, Michael Joseph Young, Michael Ashley Stein and Harold J. Bursztajn -- |t The use of genetic information outside of the therapeutic health relationship : an international perspective / |r J. Rosel Kim, Shahad Salman and Yann Joly -- |g Section 3. Th United States legislative experience. |t US legislative and policy response : some historical context to GINA / |r Peter Blanck and Aisling de Paor -- |t The Genetic Informatin Nondiscrimination Act (GINA) 2008 / |r Anya Prince and Michael Waterstone -- |t Genetic discrimination in the workplace after GINA / |r Robert S. Olick -- |g Section 4. Building the case for a European Union regulatory response. |t Genetic discrimination in insurance : lessons from Test Achats / |r James Davey -- |t Employment practices in a new genomic era : acknowledging competing rights and striking a balance / |r Aisling de Paor -- |t Medical (genetic) examinations for non-health purposes : the relevance of European legal standard setting / |r Henriette Roscam Abbing -- |t National legal and policy responses to genetic discrimination in Europe : the difficulties of regulation / |r Ine Van Hoyweghen -- |t Genetic discrimination and the draft European Union General Data Protection Regulation / |r Mark Taylor -- |t Accommodating genes : disability, discrimination and international human rights law / |r Janet E. Lord -- |g Section 5. Considering the way forward for the EU. |t Genetic discrimination : is it time for the EU to take on a new challenge? / |r Delia Ferri -- |g Conclusion / |r Aisling de Paor, Gerard Quinn and Peter Blanck. |
| 520 | |a "The science and technology of genetic testing is rapidly advancing with the consequences that genetic testing may well offer the prospect of being able to detect the onset of future disabilities. Some recent research also indicates that certain behavioural profiles may have a strong genetic basis, such as the determination to succeed and win or the propensity for risk-taking, which may be of interest to third parties. However, as this technology becomes more prevalent there is a danger that the genetic information may be misused by entities such as employers, insurance companies, educational facilities, and finance companies and that people with particular genetic profiles may be discriminated against.This book explores the different types and the potential uses of genetic testing. The book highlights the ethical and legal dilemmas and the challenges arising as a result of emerging and rapidly advancing genetic science. Chapters in the book assess the importance and impact of the US Genetic Information Non-Discrimination Act (GINA) in the employment and health insurance contexts asking whether it is proving to be an effective tool in addressing the issue of genetic discrimination and alleviating individuals' fears of discrimination. The book then goes on to make the case for regulation at the European Union level in order to protect the privacy of genetic information and to prevent the discriminatory use of genetic information in Europe. It considers what can be learnt from the experience of the US in addressing ethical and legal issues as well as the impact that the UN Convention on the Rights of Persons with Disabilities is having on this debate within the EU"-- |c Provided by publisher. | ||
| 610 | 1 | 0 | |a United States. |t Genetic Information Nondiscrimination Act of 2008. |0 http://id.loc.gov/authorities/names/no2008127860 |
| 630 | 0 | 0 | |a Convention on the Rights of Persons with Disabilities and Optional Protocol |d (2007 March 30) |0 http://id.loc.gov/authorities/names/no2007138961 |
| 630 | 0 | 7 | |a Convention on the Rights of Persons with Disabilities and Optional Protocol (2007 March 30) |2 fast |0 http://id.worldcat.org/fast/01912750 |
| 630 | 0 | 7 | |a Genetic Information Nondiscrimination Act of 2008 (United States) |2 fast |0 http://id.worldcat.org/fast/01913712 |
| 650 | 0 | |a Genetic screening |x Law and legislation |z United States. | |
| 650 | 0 | |a Genetic screening |x Law and legislation |z European Union countries. | |
| 650 | 0 | |a Discrimination in employment |x Law and legislation. |0 http://id.loc.gov/authorities/subjects/sh85038389 | |
| 650 | 0 | |a Discrimination in insurance |x Law and legislation. |0 http://id.loc.gov/authorities/subjects/sh85038395 | |
| 650 | 0 | |a Human chromosome abnormalities |x Diagnosis |x Law and legislation |z United States. | |
| 650 | 0 | |a Human chromosome abnormalities |x Diagnosis |x Law and legislation |z European Union countries. | |
| 650 | 7 | |a LAW / Medical Law & Legislation. |2 bisacsh | |
| 650 | 7 | |a LAW / Disability. |2 bisacsh | |
| 650 | 7 | |a LAW / Labor & Employment. |2 bisacsh | |
| 650 | 7 | |a Discrimination in employment |x Law and legislation. |2 fast |0 (OCoLC)fst00895060 | |
| 650 | 7 | |a Discrimination in insurance |x Law and legislation. |2 fast |0 (OCoLC)fst00895099 | |
| 650 | 7 | |a Genetic screening |x Law and legislation. |2 fast |0 (OCoLC)fst00940095 | |
| 650 | 7 | |a Human chromosome abnormalities |x Diagnosis |x Law and legislation. |2 fast |0 (OCoLC)fst00962910 | |
| 650 | 7 | |a Diskriminierung. |0 (DE-588)4012472-1 |2 gnd | |
| 650 | 7 | |a Humangenetik. |0 (DE-588)4072653-8 |2 gnd | |
| 650 | 7 | |a Medizinische Ethik. |0 (DE-588)4074672-0 |2 gnd | |
| 650 | 7 | |a Rechtsvergleich. |0 (DE-588)4115712-6 |2 gnd | |
| 651 | 7 | |a Europe |z European Union countries. |2 fast |0 (OCoLC)fst01269470 | |
| 651 | 7 | |a United States. |2 fast |0 (OCoLC)fst01204155 | |
| 651 | 7 | |a Europäische Union. |0 (DE-588)4131753-1 |2 gnd | |
| 651 | 7 | |a USA. |0 (DE-588)4078704-7 |2 gnd | |
| 700 | 1 | |a Quinn, G. |q (Gerard), |e editor. |0 http://id.loc.gov/authorities/names/n80138779 |1 http://viaf.org/viaf/93237321 | |
| 700 | 1 | |a De Paor, Aisling, |e editor. |0 http://id.loc.gov/authorities/names/n2014037135 |1 http://viaf.org/viaf/305821049 | |
| 700 | 1 | |a Blanck, Peter David, |d 1957- |e editor. |0 http://id.loc.gov/authorities/names/n85028583 |1 http://viaf.org/viaf/108462570 | |
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