Testing baby : the transformation of newborn screening, parenting, and policy making /

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Bibliographic Details
Author / Creator:Grob, Rachel, 1966-
Imprint:New Brunswick, NJ : Rutgers University Press, ©2011.
Description:1 online resource (xi, 272 pages)
Language:English
Series:Critical issues in health and medicine
Critical issues in health and medicine.
Subject:
Format: E-Resource Book
URL for this record:http://pi.lib.uchicago.edu/1001/cat/bib/11148836
Hidden Bibliographic Details
ISBN:9780813552026
0813552028
0813551358
0813551366
9780813551357
9780813551364
1280492392
9781280492396
9786613587626
6613587621
Notes:Includes bibliographical references and index.
Restrictions unspecified
Electronic reproduction. [Place of publication not identified] : HathiTrust Digital Library, 2011.
Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002. http://purl.oclc.org/DLF/benchrepro0212
English.
digitized 2011 HathiTrust Digital Library committed to preserve
Summary:Testing Baby is the first book to draw on parents' experiences with newborn screening in order to examine its far-reaching sociological consequences. Newborn screening occurs almost always without parents' consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents' interests are understood and solicited in policy debates. Rachel Grob's cautionary tale explores the powerful ways that parents' narratives.
Other form:Print version: Grob, Rachel, 1966- Testing baby. New Brunswick, NJ : Rutgers University Press, ©2011
Review by Choice Review

Newborn screening is a most interesting area that impacts each and every individual in countless ways. In this truly inspiring work, Grob (Univ. of Wisconsin-Madison) has captured what others have not been able to write about the topic. She poignantly identifies the sociological consequences that screening has on individuals, parents, and society. The interviews are quite interesting and definitely thought-provoking. It is difficult not to view any of these parent-infant situations as personal, since everyone has been touched by so many of these issues either as a health care professional or through their own experiences or with a family member or friend. The author includes an impressive, comprehensive reference list at the end of the book, along with detailed notes regarding her research as well as her interviews. This book is must reading for everyone interested in policy making, and anyone interested in being at least a "tiny bit prepared" for the possibility of receiving bad or good news, depending on how it is presented and how an individual views it. It is also mandatory for healthcare professional students or graduates who may be confronted with these types of issues with their patients. Summing Up: Essential. Upper-division undergraduates through professionals; general readers. S. C. Grossman Fairfield University

Copyright American Library Association, used with permission.
Review by Choice Review