Am I my genes? : Confronting fate and family secrets in the age of genetic testing /

Am I my genes? : Confronting fate and family secrets in the age of genetic testing /

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Bibliographic Details
Author / Creator:	Klitzman, Robert, author.
Imprint:	Oxford ; New York : Oxford University Press, ©2012.
Description:	1 online resource (x, 365 pages)
Language:	English
Subject:	Genetic screening -- Moral and ethical aspects. Privacy, Right of. Medical records -- Access control. Genetic screening -- Moral and ethical aspects. Medical records -- Access control. Privacy, Right of. Electronic books.
Format:	E-Resource Book
URL for this record:	http://pi.lib.uchicago.edu/1001/cat/bib/11301528

Hidden Bibliographic Details
ISBN:	9780199837175 0199837171 1283427486 9781283427487 9780199837168 0190207671 9780190207670 9786613427489 6613427489
Notes:	Includes bibliographical references and index. English. Online resource; title from PDF title page (viewed May 8, 2013).
Summary:	In the fifty years since DNA was discovered, we have seen extraordinary advances. For example, genetic testing has rapidly improved the diagnosis and treatment of diseases such as Huntington's, cystic fibrosis, breast cancer, and Alzheimer's. But with this new knowledge comes difficult decisions for countless people, who wrestle with fear about whether to get tested, and if so, what to do with the results. Am I My Genes? shows how real individuals have confronted these issues in their daily lives. Robert L. Klitzman interviewed 64 people who faced Huntington's Disease, breast and ovarian cancer.
Other form:	Print version: Klitzman, Robert L. Am I My Genes? : Confronting Fate and Family Secrets in the Age of Genetic Testing. Oxford : Oxford University Press, USA, ©2012 9780199837168

Table of Contents:

Embarking on Genetic Journeys: Introduction
"Do I Want to Know?": Testing Decisions
"Whom Should I Tell?": Disclosures and Testing in Families
Genetic Tests as Rorschachs: Questions of "Why Me?"
"Am I My Genes?": Genetic Identities
"Lightening Doesn't Strike Twice": Myths and Misunderstandings about Genetics
"What Should I Do About My Genes?": Deciding on Treatment
"Passing it On?": Reproductive Choices
"There's Only Privacy If You Make It": Problems with Privacy and Insurance
"Keep it in the Family?": Other Disclosures Beyond Kin
"Crossing Over": Entering Genetic Communities
"Testing Everyone?": Gene Politics
Genes in Everyday Life
Appendix A: Genetic Testing 101
Appendix B: Sample Questions from Semi-Structured Interviews
Appendix C: Additional Details Concerning Methods.