The postgenomic condition : ethics, justice, and knowledge after the genome /

The postgenomic condition : ethics, justice, and knowledge after the genome /

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Bibliographic Details
Author / Creator:	Reardon, Jenny, 1972- author.
Imprint:	Chicago : The University of Chicago Press, 2017. ©2017
Description:	311 pages : illustrations ; 23 cm
Language:	English
Subject:	Human genome -- Research -- United States -- History. Genomics -- Moral and ethical aspects. Genomics -- Social aspects. Sociogenomics. Genomics -- Social aspects. Human genome -- Research. Sociogenomics. United States. History.
Format:	Print Book
URL for this record:	http://pi.lib.uchicago.edu/1001/cat/bib/11398960

Hidden Bibliographic Details
ISBN:	9780226344553 022634455X 9780226510453 022651045X 9780226345192
Notes:	Includes bibliographical references and index.
Summary:	While the sequencing of the human genome was a landmark achievement, the availability and manipulation of such a vast amount of data about our species has inevitably led to questions that are increasingly fundamental and urgent: now that information about human bodies can be transformed into a natural resource, how will and should we interpret and use it? With The Postgenomic Condition, Jenny Reardon draws on more than a decade of research in molecular biology labs, commercial startups, governmental agencies and civic spaces to examine the extensive efforts after the completion of the Human Genome Project to transform genomics from high tech informatics practiced by a few well-financed scientists and engineers to meaningful knowledge beneficial to all people. Through her in-depth profiles of genomic initiatives around the world, we see hopes to forge public knowledge and goods from blood and DNA meet the reality of limited resources and conflicting values. building the argument around the limits of liberal concepts of openness, information, inclusion, privacy, property and the public concepts that proved salient at different points in the unfolding story of efforts to make sense of human genomes Reardon shows how genomics challenges us to move beyond existing liberal frameworks to ask deeper questions of knowledge and justice.

Description
Summary:	Now that we have sequenced the human genome, what does it mean? In The Postgenomic Condition , Jenny Reardon critically examines the decade after the Human Genome Project, and the fundamental questions about meaning, value and justice this landmark achievement left in its wake.<br> <br> <br> <br> Drawing on more than a decade of research--in molecular biology labs, commercial startups, governmental agencies, and civic spaces--Reardon demonstrates how the extensive efforts to transform genomics from high tech informatics practiced by a few to meaningful knowledge beneficial to all exposed the limits of long-cherished liberal modes of knowing and governing life. Those in the American South challenged the value of being included in genomics when no hospital served their community. Ethicists and lawyers charged with overseeing Scottish DNA and data questioned how to develop a system of ownership for these resources when their capacity to create things of value--new personalized treatments--remained largely unrealized. Molecular biologists who pioneered genomics asked whether their practices of thinking could survive the deluge of data produced by the growing power of sequencing machines. While the media is filled with grand visions of precision medicine, The Postgenomic Condition shares these actual challenges of the scientists, entrepreneurs, policy makers, bioethicists, lawyers, and patient advocates who sought to leverage liberal democratic practices to render genomic data a new source of meaning and value for interpreting and caring for life. It brings into rich empirical focus the resulting hard on-the-ground questions about how to know and live on a depleted but data-rich, interconnected yet fractured planet, where technoscience garners significant resources, but deeper questions of knowledge and justice urgently demand attention.
Physical Description:	311 pages : illustrations ; 23 cm
Bibliography:	Includes bibliographical references and index.
ISBN:	9780226344553 022634455X 9780226510453 022651045X 9780226345192