Society and genetic information : codes and laws in the genetic era /
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| Edition: | English ed. |
|---|---|
| Imprint: | Budapest, Hungary ; New York, NY : Central European University Press, 2003. |
| Description: | 422 p. ; 24cm. |
| Language: | English |
| Series: | CPS Books |
| Subject: | |
| Format: | Print Book |
| URL for this record: | http://pi.lib.uchicago.edu/1001/cat/bib/5275279 |
Table of Contents:
- Preface / Octavi Quintana-Trias
- Introduction: Genetic Information: Science, Society, and Legal Norms / Judit Sandor
- Genetic Revolution? Consequences for Science and Society / Pal Venetianer
- What Can We Do with Our Genetic Knowledge? / Istvan Rasko
- Religious Traditions and Stem Cell Research / Bela Somfai
- Moral Dilemmas of Gene Transfer Techniques / Imre Szebik
- Seeking Common Grounds on Genetic Issues: The UNESCO Declaration on the Human Genome / Roberto Andorno
- Who Owns Genetic Information? / David Townend
- The Genetic Testing of Children / Sheila McLean
- A Disability Rights Approach to Genetic Discrimination / Gregor Wolbring
- Insurance and Genetic Testing in Germany and the International Context / Jurgen Simon
- The Constitutionality of the Icelandic Act on a Health Sector Database / Ragnar Aoalsteinsson
- The Estonian Genome Project / Krista Kruuv and Ants Nomper
- The Latvian Genome Project / Valdis Pirags and Elmars Grens
- Population Genome Project in Latvia: Exploring the Articulation of Agency / Aivita Putnina
- The UK Biobank / Alan Doyle, Frances Rawle and Peter Greenaway
- App. Legal and Ethical Norms in the Field of Genetics. A Selection of International and National Legal Documents, Reports, and Policy Recommendations
- App. Universal Declaration on the Human Genome and Human Rights (UNESCO, 1997)
- App. International Declaration on Human Genetic Data (UNESCO, 2003)
- App. Convention on Human Rights and Biomedicine (Council of Europe, 1997)
- App. Additional Protocol on the Prohibition of Cloning Human Beings (Council of Europe, 1998)
- App. European Biotechnological Directive (European Parliament and the Council of Europe, 1998)
- App. Health Sector Database Act (Iceland, 1998)
- App. Biobanks Act (Iceland, 2000)
- App. Human Genes Research Act (Estonia, 2001)
- App. Human Genome Research Act (Latvia, 2003).
