Having epilepsy : the experience and control of illness /
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| Author / Creator: | Schneider, Joseph W., 1943- |
|---|---|
| Imprint: | Philadelphia : Temple University Press, 1983. |
| Description: | xiii, 280 p. ; 22 cm. |
| Language: | English |
| Subject: | |
| Format: | Print Book |
| URL for this record: | http://pi.lib.uchicago.edu/1001/cat/bib/572191 |
Table of Contents:
- Preface
- 1. The Sociology of Illness
- Medicine, Sociology, and Illness: Outsider Perspectives
- The Experience of Illness: Toward an Insider's Perspective
- Studying Epilepsy: Data, Sample and Method
- Outline of the Book
- 2. The Historical and Social Realities of Epilepsy
- Historical Notes
- Three Myths About Epilepsy
- Myth 1. Epilepsy Is an Inherited Disease
- Myth 2. Epilepsy Creates Psychopathology and Leads to Mental Illness
- Myth 3. Epilepsy Causes Aggression and Crime
- The Social Response to Epilepsy: A Stigmatized Illness
- The Medical Reality of Epilepsy
- Diagnosis
- Etiology
- Epidemiology
- Prognosis and Treatment
- 3. Discovery
- Definitions, Diagnosis, and Discovery
- Making the Strange Familiar: Lay Definitions
- Medical Uncertainty: Delaying Discovery
- Self Diagnosis and Pessimistic Accounts
- The Impact of a Medical Label
- 4. The Other Side of Care: Parents and Family Life
- Parents, Children, and Epilepsy
- Setting the Stage: Open and Closed Parental Styles
- The Open Style: Epilepsy as a "Normal" Medical Problem
- The Closed Style: A Route to Disability and Dependence
- Worry, Protection, and Control
- 5. Seizures and Self
- Having a Seizure: Losing Control
- Seizures as Social Events: Trouble for Others
- Embarrassment
- "Call an Ambulance": Seizures as Medical Emergencies
- Seizures, Responsibility, and Social Competence
- 6. Controlling Seizures, Protecting Face
- Toward Regaining Control: Seizure Theories and Preventive Work
- Seizure Theories
- Preventive Work
- Some Lines of Defense
- Anticipatory Defenses
- Emergency Measures
- After a Seizure: Attending to Face
- 7. The Problem of Stigma: Managing Information
- Stigma and Epilepsy
- The Perception of Stigma
- Strategies of Selective Concealment
- Instrumental Telling: Disclosing as a Management Strategy
- 8. Ties That Bind and Free: The Paradox of Medical Care
- Seeking Information
- Information: A Scarce and Valuable Resource
- Obtaining Information
- Gaining Control
- 9. The Meaning of Medications
- A Ticket to Normality
- Taking Medications
- Self-Regulation: Grounds for Changing Medication Practice
- Social Meanings of Regulating Medication Practice
- Testing
- Controlling Dependence
- Destigmatization
- Practical Practice
- Asserting Control
- 10. Having Epilepsy: The Experience and Control of Illness
- Illness and Epilepsy: General Concerns and Particular Insights
- Managing Uncertainty
- Knowledge of Disease and Illness as a Resource
- Relationships with Medical Professionals
- Managing Regimens
- Symptom and Crisis Control
- Family Relationships
- Friends and Associates
- Illness, Social Meanings, and Identity
- Suggestions for Change
- Changes in Society: The Public Image and Control of Epilepsy
- Changes in Medical Practice: Doctors and Patients as Partners
- Changes in the Life: Owning Epilepsy and Realizing Self
- Appendix
- Doing the Study: Issues, Problems, and Strategies
- Studying the Experience of Illness
- Who to Study: Sampling
- How to Collect Data: Interviewing
- Making Sense of the Data: Analysis
- Roads Not Taken
- Interview Guide
- Letter Passed to Anonymous People with Epilepsy
- References
- Index
