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|b G484 2007
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| 245 |
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|a Genomics and public health :
|b legal and socio-ethical perspectives /
|c edited by Bartha Maria Knoppers.
|
| 260 |
|
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|a Leiden ;
|a Boston :
|b Martinus Nijhoff,
|c c2007.
|
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|a 329 p. ;
|c 25 cm.
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|g Pt. I.
|t Population screening : issues, realities and possibilities --
|g A.
|t Introduction : expansion of screening /
|r J. Gerard Loeber --
|t Expansion of newborn screening : current achievements and new prospects /
|r Bridget Wilcken --
|t Screening newborns for genetic susceptibility : what's the harm? /
|r Nikki Kerruish --
|t Newborn screening expansion : Massachusetts research models encompass public health service responsibility /
|r Anne Marie Comeau --
|t Carriers detected by neonatal screening : a clinical geneticist's view /
|r Helena Kaariainen and Ilona Autti-Ramo --
|t Systematic neonatal screening and carrier detection : lessons from sickle cell disease and cystic fibrosis screening in France /
|r Jean-Louis Dhondt --
|t Carrier detection in newborns : should it be discovered? : should it be disclosed? : lessons from sickle cell anemia and cystic fibrosis screening in the United States /
|r Lainie Friedman Ross --
|g B.
|t Introduction : newborn screening : storage and access for research /
|r Ellen Wright Clayton --
|t The Danish newborn screening biobank in practice and research : revised biobank regulations /
|r Bent Norgaard-Pedersen and David M. Hougaard --
|t Research and public health surveillance using newborn bloodspots in Canada /
|r Denise Avard --
|t Implementation of population screening /
|r Jane Halliday --
|g Pt. II.
|t Balancing interests in public health genomics --
|t Introduction : of genomics and public health : building public "goods"? /
|r Bartha Maria Knoppers --
|t Privacy issues in public health genomics /
|r Mark Rothstein and Herbert F. Boehl --
|t Balancing private and public interests in policy /
|r Darren Shickle --
|t Public opinion, consent and population genetic biobanks /
|r Timothy Caulfield and Nola M. Ries --
|t Challenges for public health genomics - the public health perspective on genome-based knowledge and technologies /
|r Angela Brand --
|g Pt. III.
|t Genomics and public health : current approaches and future perspectives --
|t Introduction : the role of international stakeholders in genomics and public health /
|r Andrea Boggio --
|t From genomic research to public health practice : international policy implications /
|r Stuart Hogarth --
|t GRaPH Int : an international network for public health genomics /
|r Alison Stewart, Mohamed Karmali and Ron Zimmern --
|t The role of international stakeholders patients as partners /
|r Alastair Kent --
|t Genomics and modes of democratic dialogue : an analysis of two projects /
|r Hubert Doucet, Marianne Dion-Labrie, Celine Durand and Isabelle Ganache --
|t Meeting of minds : a European citizen's deliberation on emerging technologies /
|r Marie-Helene Mouneyrat --
|t Developments in genomics : engaging young people /
|r Caroline Hurren --
|t Interdisciplinary graduate training in public health genetics at the University of Washington /
|r Melissa A. Austin.
|
| 650 |
|
0 |
|a Genetic screening
|x Law and legislation.
|0 http://id.loc.gov/authorities/subjects/sh2003010545
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| 650 |
|
0 |
|a Genomics.
|0 http://id.loc.gov/authorities/subjects/sh2002000809
|
| 650 |
|
0 |
|a Genomics
|x Moral and ethical aspects.
|
| 650 |
|
0 |
|a Public health.
|0 http://id.loc.gov/authorities/subjects/sh85108638
|
| 650 |
|
7 |
|a Genetic screening
|x Law and legislation.
|2 fast
|0 http://id.worldcat.org/fast/fst00940095
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| 650 |
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7 |
|a Genomics.
|2 fast
|0 http://id.worldcat.org/fast/fst00940228
|
| 650 |
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7 |
|a Public health.
|2 fast
|0 http://id.worldcat.org/fast/fst01082238
|
| 700 |
1 |
|
|a Knoppers, Bartha Maria.
|0 http://id.loc.gov/authorities/names/n84081135
|1 http://viaf.org/viaf/36981008
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