Genomics and public health : legal and socio-ethical perspectives /
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| Imprint: | Leiden ; Boston : Martinus Nijhoff, c2007. |
|---|---|
| Description: | 329 p. ; 25 cm. |
| Language: | English |
| Subject: | |
| Format: | E-Resource Print Book |
| URL for this record: | http://pi.lib.uchicago.edu/1001/cat/bib/6241829 |
Table of Contents:
- Acknowledgements
- Part I. Population screening: issues, realities and possibilities
- A. Introduction: Expansion of Screening
- Expansion of Newborn Screening: Current Achievements and New Prospects
- Screening Newborns for Genetic Susceptibility: What's the Harm?
- Newborn Screening Expansion: Massachusetts Research Models Encompass Public Health Service Responsibility
- Carriers Detected by Neonatal Screening: A Clinical Geneticist's View
- Systematic Neonatal Screening and Carrier Detection: Lessons from Sickle Cell Disease and Cystic Fibrosis Screening in France
- Carrier Detection in Newborns: Should it be Discovered? Should it be Disclosed? Lessons from Sickle Cell Anemia and Cystic Fibrosis Screening in the United States
- B. Introduction: Newborn Screening: Storage and Access for Research
- The Danish Newborn Screening Biobank in Practice and Research: Revised Biobank Regulations
- Research and Public Health Surveillance Using Newborn Bloodspots in Canada
- Implementation of Population Screening
- Part II. Balancing interests in public health genomics
- Introduction: Of Genomics and Public Health: Building Public "Goods"?
- Privacy Issues in Public Health Genomics
- Balancing Private and Public Interests in Policy
- Public Opinion, Consent and Population Genetic Biobanks
- Challenges for Public Health Genomics - the Public Health Perspective on Genome-based Knowledge and Technologies
- Part III. Genomics and public health: current approaches and future perspectives
- Introduction: The Role of International Stakeholders in Genomics and Public Health
- From Genomic Research to Public Health Practice: International Policy Implications
- GRaPH Int: An International Network for Public Health Genomics
- The Role of International Stakeholders Patients as Partners
- Genomics and Modes of Democratic Dialogue: An Analysis of Two Projects
- Meeting of Minds: A European Citizen's Deliberation on Emerging Technologies
- Developments in Genomics: Engaging Young People
- Interdisciplinary Graduate Training in Public Health Genetics at the University of Washington
