The ethics and governance of human genetic databases : European perspectives /
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| Imprint: | Cambridge ; New York : Cambridge University Press, 2007. |
|---|---|
| Description: | xi, 283 p. ; 24 cm. |
| Language: | English |
| Series: | Cambridge law, medicine, and ethics |
| Subject: | |
| Format: | Print Book |
| URL for this record: | http://pi.lib.uchicago.edu/1001/cat/bib/6430126 |
Table of Contents:
- List of contributors
- 1. Introduction: some lessons of ELSAGEN
- Part I. Background
- 2. On human genetic databases
- 3. American principles, European values and the mezzanine rules of ethical genetic databanking
- 4. The languages of privacy
- Part II. Social concerns
- 5. A sociological perspective: public perceptions of privacy and their trust in institutions managing and regulating genetic databases
- 6. Estonia
- 7. Iceland
- 8. Sweden
- 9. United Kingdom
- 10. Public discourses on human genetic databases
- Part III. Legal issues
- 11. Regulating human genetic databases in Europe
- 12. Consent and population genetic databases: a comparative analysis of the law in Iceland, Sweden, Estonia and the UK
- 13. Third parties' interests in population genetic databases: some comparative notes regarding the law in Estonia, Iceland, Sweden and the UK
- 14. Transforming principles of biolaw into national legislation: comparison of four national laws in three aspects
- 15. Governance of population genetic databases: a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK
- 16. The legal jigsaw governing population genetic databases: concluding remarks on the ELSAGEN legal findings
- Part IV. Ethical questions
- 17. Introduction: ethical questions
- 18. Pursuing equality: questions of social justice and population genomics
- 19. Benefit-sharing and biobanks
- 20. Genetic discrimination
- 21. Privacy
- 22. Trust
- 23. Informed consent and human genetic database research
- Part V. Political considerations
- 24. The impact of biobanks on ethical frameworks
- 25. Genetics, rhetoric and policy
- 26. Genetic databases and governance
- Part VI. Conclusion
- 27. Bioethical analysis of the results: how well do laws and regulations address people's concerns?
- Bibliography
- Index
