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20230830201258.6 |
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080125s2008 enk b 001 0 eng |
| 010 |
|
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|a 2008003427
|
| 020 |
|
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|a 9780754672555 (hardback : alk. paper)
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| 020 |
|
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|a 0754672557 (hardback : alk. paper)
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| 035 |
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|a 2008003427
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| 035 |
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|a (OCoLC)223104423
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| 040 |
|
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|a DNLM/DLC
|c DLC
|d NLM
|d UKM
|d BWKUK
|d YDXCP
|d BWX
|d CDX
|d UtOrBLW
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| 042 |
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|
|a pcc
|
| 050 |
0 |
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|a QH438.7
|b .E836 2008
|
| 060 |
0 |
0 |
|a 2008 N-818
|
| 060 |
1 |
0 |
|a QU 470
|b E835 2008
|
| 082 |
0 |
0 |
|a 174.2
|2 22
|
| 245 |
0 |
0 |
|a Ethical issues in governing biobanks :
|b global perspectives /
|c edited by Bernice Elger ... [et al.].
|
| 260 |
|
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|a Aldershot, England ;
|a Burlington, VT :
|b Ashgate Pub. Ltd.,
|c c2008.
|
| 300 |
|
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|a vi, 257 p. ;
|c 24 cm.
|
| 336 |
|
|
|a text
|b txt
|2 rdacontent
|0 http://id.loc.gov/vocabulary/contentTypes/txt
|
| 337 |
|
|
|a unmediated
|b n
|2 rdamedia
|0 http://id.loc.gov/vocabulary/mediaTypes/n
|
| 338 |
|
|
|a volume
|b nc
|2 rdacarrier
|0 http://id.loc.gov/vocabulary/carriers/nc
|
| 504 |
|
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|a Includes bibliographical references and index.
|
| 505 |
0 |
|
|a Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron.
|
| 650 |
|
0 |
|a Human genetics
|x Databases
|x Moral and ethical aspects.
|
| 650 |
|
0 |
|a Human genetics
|x Databases
|x Law and legislation.
|
| 650 |
1 |
2 |
|a Genome, Human.
|
| 650 |
2 |
2 |
|a Confidentiality.
|
| 650 |
2 |
2 |
|a Databases, Genetic
|x ethics.
|
| 650 |
2 |
2 |
|a Databases, Genetic
|x legislation & jurisprudence.
|
| 650 |
2 |
2 |
|a Genetic Research
|x ethics.
|
| 650 |
2 |
2 |
|a Genetics, Population
|x ethics.
|
| 700 |
1 |
|
|a Elger, Bernice S.,
|d 1964-
|1 http://viaf.org/viaf/46920634
|
| 903 |
|
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|a HeVa
|
| 929 |
|
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|a cat
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|t Library of Congress classification
|a QH438.7 .E836 2008
|l JCL
|c JCL-Sci
|i 5375305
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| 927 |
|
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|t Library of Congress classification
|a QH438.7 .E836 2008
|l JCL
|c JCL-Sci
|e CRERAR
|b 089017945
|i 8586570
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