Ethical issues in governing biobanks : global perspectives /
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| Imprint: | Aldershot, England ; Burlington, VT : Ashgate Pub. Ltd., c2008. |
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| Description: | vi, 257 p. ; 24 cm. |
| Language: | English |
| Subject: | |
| Format: | E-Resource Print Book |
| URL for this record: | http://pi.lib.uchicago.edu/1001/cat/bib/7694284 |
Table of Contents:
- Introduction: biobanks, genomics, and research - a nightmare for public policy makers?
- Part I. Research Biobanks
- Current Status and Debates
- Biobanks in the literature
- Guidelines on biobanks: emerging consensus and unresolved controversies
- Part II. Consensus and Controversies Among International Experts Concerning Issues Raised
- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts
- Consent and use of samples
- Consent to research involving human biological samples obtained during medical care
- Collective consent
- Withdrawal of consent and destruction of samples
- Anonymization and coding
- Informing participants about research results
- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries
- Public domain sharing, patents, and fees resulting from research involving genetic databases
- Benefit-sharing and remuneration
- Transfer of samples and sharing of results: requirements imposed on researchers
- Part III. Shaping the Future Legal and Ethical Development of Genetic Databases
- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks
- Biobanks and genomic research: what shape the future?
- Index
