Hidden Bibliographic Details
| Other authors / contributors: | National Academies of Sciences, Engineering, and Medicine (U.S.). Forum on Promoting Children's Cognitive, Affective, and Behavioral Health, issuing body.
National Academies of Sciences, Engineering, and Medicine (U.S.). Health and Medicine Division, issuing body.
Workshop on Ensuring Quality and Accessible Care for Children with Disabilities and Complex Health and Educational Needs (2015 : Washington, D.C.)
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| ISBN: | 9780309447690
0309447690
9780309447706
0309447704
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| Notes: | Includes bibliographical references.
This activity was supported by contracts between the National Academy of Sciences and the American Academy of Pediatrics (unnumbered award); the American Board of Pediatrics (unnumbered award); the Assistant Secretary for Planning and Evaluation (HHSP23337021); Autism Speaks (unnumbered award); the Centers for Disease Control and Prevention (200-2011-38807, TO #16); the Conrad N. Hilton Foundation (20150118); the Department of Justice Office of Juvenile Justice and Delinquency Prevention (2013-MU-MU-0002); the National Institutes of Health (HHSN26300035); the Robert Wood Johnson Foundation (71071); and the Substance Abuse and Mental Health Services Administration (HHSP23337029). The views presented in this publication do not necessarily reflect the views of the organizations or agencies that provided support for the activity. Additional support came from the American Orthopsychiatric Association, the American Psychological Association, the Community Anti-Drug Coalitions of America, the Hogg Foundation for Mental Health, the Society for Child and Family Policy and Practice, the Society of Clinical Child and Adolescent Psychology, and the Society of Pediatric Psychology.
Description based on online resource; title from PDF title page (viewed on December 12, 2016).
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| Summary: | Children with disabilities and complex medical and educational needs present a special challenge for policy makers and practitioners. These children exhibit tremendous heterogeneity in their conditions and needs, requiring a varied array of services to meet those needs. Uneven public and professional awareness of their conditions and a research base marked by significant gaps have led to programs, practices, and policies that are inconsistent in quality and coverage. Parents often have to navigate and coordinate, largely on their own, a variety of social, medical, and educational support services, adding to the already daunting financial, logistical, and emotional challenges of raising children with special needs. The unmet needs of children with disabilities and complex medical and educational needs can cause great suffering for these children and for those who love and care for them. To examine how systems can be configured to meet the needs of children and families as they struggle with disabilities and complex health and educational needs, the National Academies of Sciences, Engineering, and Medicine held a workshop in December 2015. The goal of the workshop was to highlight the main barriers and promising solutions for improving care and outcome of children with complex medical and educational needs. Workshop participants examined prevention, care, service coordination, and other topics relevant to children with disabilities and complex health and educational needs, along with their families and caregivers. More broadly, the workshop seeks actionable understanding on key research questions for enhancing the evidence base; promoting and sustaining the quality, accessibility, and use of relevant programs and services; and informing relevant policy development and implementation. By engaging in dialogue to connect the prevention, treatment, and implementation sciences with settings where children are seen and cared for, the forum seeks to improve the lives of children by improving the systems that affect those children and their families. This publications summarizes the presentations and discussions from the workshop.
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| Other form: | Also available in print: Olson, Steve, 1956- Ensuring quality and accessible care for children with disabilities and complex health and educational needs Washington, D.C. : National Academies Press, 2016 9780309447690
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